Archive for June, 2010

Ulcerative Colitis Module 6: Nutrition

Questions addressed in this module include: How important is diet? How can we optimize nutritional intake? Are there foods we should avoid? What types of nutrient supplements should we discuss implementing into our diet? Featuring: Karen Warman, MS, RD, LDN, Pediatric Dietitian. This video is part of the video series “Growing Up With Ulcerative Colitis: What Every Family Should Know” — brought to you by Children’s Hospital Boston.

This is my story of ileum resection surgery in slide-show form. Just pics of how it went for me in hopes of helping someone else in a similar situation. Let me know if it does, I love comments! For anyone looking for information or support I always recommend this site: www.wearecrohns.org

Crohns disease treatments? PLEASE HELP?

I have been using remicade for about 4 months and it has been working really well except for the fact that it will stop working at about 4 and a half to 5 weeks so my doctor keeps uping the dose. I am now at the limit he wants to put me. So far it has been 2 days since my treatment and i am not noticing a big difference. Usually it is noticable the next day or so. If this doesn’t last 6 weeks then I will have to use some other medication like humira. I can do an IV but the thought of a self injected needle really scares me. How long does it take most people to get a responce from remicade and would some of my stomach issues be provoked by anxiety and nervousness of possible having to use another medication. I have noticed I usually have to use the bathroom imediatly after somthing that is scarry happens. Should I talk to my doctor about this?

What is this type of scientist called?

The one’s that find cures for diseases? Like Crohn’s disease, Ulcerative Colitis, and those type of things?
No, i have Crohns too. Thats the type of doctor you go to. They dont find cures, they just help you.

Chron’s disease Question?

My mom has been diagnosed with Chron’s disease over the summer. Just recently, the skin on her hands has been…. sort of hardening I guess. It feels like leather and is blistered. She puts lotion on it, but it still cracks and bleeds.

What kind of lotion or medicine can she put on it to stop it from drying and cracking?

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