Comments on: Does any one else have Crohn's Disease? http://www.crohnsdiseasemindandbody.com/does-any-one-else-have-crohns-disease/ Understanding and exploring Crohns Disease and its effects on the mind and body. Mon, 21 May 2012 00:32:26 +0000 http://wordpress.org/?v=2.7.1 hourly 1 By: Loz http://www.crohnsdiseasemindandbody.com/does-any-one-else-have-crohns-disease/comment-page-1/#comment-599 Loz Sun, 06 Jun 2010 16:37:42 +0000 http://crohnsdiseasemindandbody.com/does-any-one-else-have-crohns-disease/#comment-599 Hi there. I don't have Crohne's Disease, but I'm 25 and I've had Complex Regional Pain Syndrome (the correct name for RSD) since I was 14. It started in my right knee following a minor operation, but it now affects almost my whole body and ahs put me in a wheelchair because of some of its secondary effects that no amount of physio or medication has been able to counteract. I've never heard of medications causing CRPS/RSD - it's almost always initiated by some sort of injury or other trauma. I wish that I could tell you how to control it - I've been through pretty much every recognised treatment with no real success. I guess that my only advice for what it's worth is to take each day as it comes and to recognise that you are going to have bad days. Don't give up by any means, but know your limits and boundaries, and know when it is time to say 'okay' I've had enough and when it is okay to push yourself that little bit harder. If I can help in any way, please feel free to email me. Hi there. I don’t have Crohne’s Disease, but I’m 25 and I’ve had Complex Regional Pain Syndrome (the correct name for RSD) since I was 14. It started in my right knee following a minor operation, but it now affects almost my whole body and ahs put me in a wheelchair because of some of its secondary effects that no amount of physio or medication has been able to counteract. I’ve never heard of medications causing CRPS/RSD - it’s almost always initiated by some sort of injury or other trauma.

I wish that I could tell you how to control it - I’ve been through pretty much every recognised treatment with no real success. I guess that my only advice for what it’s worth is to take each day as it comes and to recognise that you are going to have bad days. Don’t give up by any means, but know your limits and boundaries, and know when it is time to say ‘okay’ I’ve had enough and when it is okay to push yourself that little bit harder.

If I can help in any way, please feel free to email me.

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